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Re: Mental Health Reform - Call For Action - Part 2

Thank you for this most interesting post, @Willy. I, too, have views from experience, study, discussion and observation that are contrary to so many that I have stopped fighting. Too few have in-depth understanding, simply believing what they have been told, and those who do are often at variance on a number of other points. I guess finding areas of agreeance is key–and they seem to be many–discussing and refining them, then working on others to assess their validity or relevance as required. 

 

My stand is that so-called 'mental illness' is caused – primarily by events within one's ancestral line which, when not attended to, cause increasing problems in successive generations, expressing itself in various psychological disorders–I would also assert all? other disorders too. It's nature's way of showing us the true state of things in our lineage. (I guess that's why psychiatrists ask if there is occurrence of so-called 'mental illness' in our family. I regard that as implying that it is inherited, whereas I regard it as walking the same path, unable to get off it and, being inevitably shaped by the already injured–thus causing another repeat cycle).

 

These circumstances leave individuals vulnerable to exploitation and abuse which heighten the disorder. Of course, this cannot be elaborated on sufficiently in this short post. I can trace mine back through previous generations–and probably ancestrally if I had the data–and identify our vulnerabilities to abuse and exploitation. Unfortunately, I cannot escape my situation because I became wise too late, when the damage to my life had been done.

 

Just as we develop physical injury from different events with different consequences, we also develop psychological injury in various forms from psychologically damaging events. 

 

Medication can numb psychological distress of any kind, but it doesn't cure it. I'm for finding cure not just to the injury but to the cause*, not glossing over the problem.

 

*It inevitably links to the nature of our inter-personal relationships, from my observation. 

 

I heard a young woman on television recently who said that bi-polar is incurable. If that's what she believes, that is the level of treatment she will receive, and the myth will continue and grow into urban legend. Such misconceptions abound.

 

Unfortunately, yours is a long and insightful post and I am pressed for time to do service to it. I am putting my hand up and will be interested to see if we can take this further. 

 

I'm not hopeful, @Willy, but my hand is up. I'm rather burned out and I just can't see where this could go, at the moment.

Re: Mental Health Reform - Call For Action - Part 2

Hey @Willy Finally looked at this thread.  Heads up, that I did not receive notification of your tags, only the tag for Part 1.  It may be something to do with cut and paste in large batches sometimes does not work ...???

 

Worth the read again.  It is a heavy read for some.

 

I have been on board since the 1980s when I did a year of psychosocial theory at significant ranking university and got an H1s.  Ha ha my lived experience even at that time gave me a lot of insight.  It was actually a well recognised course and ran for 20 years run by a Dr John Cash.  God only knows how many books I have read by mental health professionals ... lol ... in certified courses and in my spare time ... as my daughter says I know too much about it ... weary sigh ... always open to learn more ...

 

My interest in the bio ... side is bigger than just medical model ... I had a great time at the zoo volunteering and coming to terms with various physiological realities.  

 

@Patchworks Good to read your additional reply.  Psychosis is not for cissies.  I understand the longing for calm that meds can bring about.  I still take some, but carefully titrating down.  

 

@Historylover Loved your post.

 

@Former-Member We all can only give what we can genuinely manage at the time, balancing our various commitments.  

 

@Former-Member For all the limitations of any one model of intervention and this forum has its limits, I am still grateful for the tribe I have met here.  

 

I do not mean to be abrupt or gloss over things, a little pressed for time to deal with all that has been raised.

 

My hand is up, and I have skin in the game too.  

Re: Mental Health Reform - Call For Action - Defining the term BioPsychoSocial etc

Hi @Willy .🙂 I think you must've overloaded the SANE servers with this thread. Like @Appleblossom , I didn't recieve any notifications for the numerous tags you did of my name.

 


@Willy wrote:

What the hell does "psychosocial" - let alone ""biopsychosocial"  mean?
I didn't invent these terms. I just try to use the same jargon that all the pro's use so that I am not quite so easily labelled as a deluded idiot which has been something of a problem throughout my life.


I know. I apologize if it came off as if I was attacking you for the language used in your post; that was not my intention. I was more raging against the fact that these are the official terms that dominate the conversations these days.

 

The mere fact that these are the terms that have been settled upon by all the pros more or less railroads laypeople like us in to having to use them in our conversations, even though the terms are mostly so vague and nonsensical as to basically be meaningless.

 


@Willy wrote:

If you contact your general medical practitioner and they are not all for medication which in my experience at least a few of them aren't they may help you  skirt around the state government system and get set up with a qualified psychologist subsidised by medicare.


Which is just as useless - and potentially harmful - as the pill pushers. My pill-pusher psychiatrist was no day at the beach, but by far the worst dammage I experianced was done by my psychologist.

 

For me, the issue with involving my GP in my dillemma was that I was uncomfortable airing my personal problems, and personal values to him.  A GP's sole job, as far as I'm concerned, is to attend to my medical needs. I didn't want to face funny looks that said: "Oh, it's that creepy, screwed up guy again," every time I needed to wander in to the clinic to get some bronchitis, etc. treated. What I wanted was a completely detatched helper who would fix my problems for me, and then disappear from my life forever, so that I wouldn't have to permanently be entangled with someone who looked at me like some kind of walking defect, whose mentality creeped them out and spoiled their sense of community.

 

But even putting my personal hangups aside, I don't know if GPs actually help with non-medical problems these days.

 

My family tells tales of a great-aunt we had, who was unemployed and so her doctor gave her a job. That would've been back in the 40s or 50s; they don't seem to do that anymore. Instead, they just push you on to a therapist, and they don't help, either.

 


@Willy wrote:

When a person loses their job, can't pay the bills, experiences the death or serious illness of a loved one etc etc they are not "mentally ill". They are distressed, sometimes horribly so. The reality is that normal life can be very difficult at times for many people. Facilities like the SANE forum try to act as a substitute or perhaps supplement for family and friends but imo, it is done in an incompetent, cumbersome and often arrogant way that often severely limits its usefulness.


I think I can relate to your gripes there, somewhat.

 

Last year, the government beaurocracy started coming after me (due to a data screwup on their part). I had an early inkling that I was about to encounter some grief with them, so I came on here, asking for help finding therapists/services that sort out beaurocracy stuff-ups for people.

 

Much to my frustration, I was told that no such service exists, or at least, nobody here knew of any such service, and that I was essentially on my own. Yet again, I reach out for help only to be told it does not exist. And the MH campaign ads & anti-suicide billboards: "No matter what your going through, there is help available!" keep rolling. As do my eyes whenever I have to see them.

 

Thankfully, my beaurocratic grievance was corrected rather promptly. But I know many others aren't so fortunate - often leading to extreme depression, anxiety, and suicides.

 

I'm not faulting SANE for not having any answers. But I'm more or less agreeing with you that it's folly for the public and government to think that places like this fill the needs that go untended by the rest of the mental health industry. Because clearly they don't.

 


@Willy wrote:

Do the words "A caring and sharing community" mean anything to you?


They didn't. 😉 But I Googled them, and I believe I know who your talking about, now. Can't say I'd heard much about them beforehand.

Re: Mental Health Reform - Call For Action - Defining the term BioPsychoSocial etc

thank you so much for sharing your perspectives and experiences on this @chibam. I know we always have to be aware of how power plays out in MH and be aware of the needs of everyone. I'm wondering what kind of things have you done to cope over the years when the MH system hasn't met your needs? 

 

And I would LOVE a bureaucracy support service. I have ADHD and the differences in my brain mean I really struggle with admin even though I know it's important. It's cost me THOUSANDS of dollars over my life. I know it's something I would benefit from.

 

I also think though, it's important to acknowledge that others may have different experiences to yourself. And both can be true. And as a peer-led forum, we've got to be open to others worldviews and experiences while not making assumptions about others experiences. For example, I have been so lucky because in the last few years, I found an incredible GP who is one of my main supports for my MH and non-physical health related things. And I know many others have too.

But as always, I know we all appreciate learning from your experiences. So thank you and I hear you

Re: Mental Health Reform - Call For Action - Defining the term BioPsychoSocial etc

Hi @chibam 

A quick response to a few points you raise.

Like it or not GPs have become the first port of call for government mental health services these days. Not only are they not properly trained for this job but some of them have the empathy of a dead cat which imo makes them worse than useless and a potential danger to someone who comes in experiencing MH problems. ime some are very good though.

There are some pretty bad psychologists and psychiatrists around.  Some of them ime are real nut jobs but like the GP's there are also some good ones. imo, the most important quality is empathy. The ability to be able to connect, listen and "walk in your shoes".

I don't want to go into the limitations of the SANE forum and organisation other than to say my experiences have been similar to yours and probably many others. You are probably aware that they are having a review/audit soon. I have put up my hand to participate and will bring up some of these issues if I am able to do so.

I am a big supporter of proper peer to peer groups. I got involved in one of these more than 35 years ago and it helped me turn my life around. Unfortunately a bunch of psychiatrists got wind of what we were doing and persuaded the government that a bunch of psychotics supporting themselves without supervision was dangerous. Eventually the government stepped in and stifled the whole thing with government paid supervisors attending the groups. We used to call ourselves a "caring and sharing community" which it was until it became a controlling and manipulative part of a bureaucracy. These days I am involved in a couple of international MH communities which are much closer to that original peer to peer support group than SANE is. Again if I am able to do so I will try and raise these points at this upcoming review.

Regards

Willy 

Re: Mental Health Reform - Call For Action - Part 2

What the actual fuck are you on about

Re: Mental Health Reform - Call For Action - Part 2

@ArraDreaming Trying to fixing a fucked up system that doesn't work for a lot of people.

Re: Mental Health Reform - Call For Action - Part 2

Alrigh then

Re: Mental Health Reform - Call For Action - Part 2

hey @Willy and @ArraDreaming, I know this topic is really close to home. Please look at the respect guidelines https://saneforums.org/t5/help/faqpage/title/respect

 

I know you both have a lot of really valuable experiences to share and I want you to share them and keep the convo going

Re: Mental Health Reform - Call For Action - Part 2

Pretty sure I’m an adult and can say what I want champ @Former-Member